Scoop on the Poop Test
Funny but I just realized the irony of the name of this blog..Holding on and Moving Forward.... I named it two years ago when I felt like I was hanging on to one of the last shreds of my courage. My beloved grandfather was gravely ill and I was given news 3 days before my 39th b-day that I only had a 1-5% chance of delivering a baby. I was pretty upset but the internet and a google search on "High FSH" took me to this forum that really helped me to keep "moving forward"... Well that was a side note..Holding on now kind of means Nethan holding on to poop! The moving forward part means I keep on bugging and bugging and BUGGING Drs until I get answers &/or the poop situation changes...
So... on to the scoop of the moment...
Arrive at the imaging place early. Presented with Barium Enema paperwork to sign. Inform woman it is supposed to be Gastrograffin not Barium. Frustrated because I called the place yesterday to ask if they could do Gastrograffin and confirm the Dr. had written it as Gastrograffin. They told me they did Gastrograffin IF the Dr writes it for that BUT the orders were written for Barium. Call the Dr. office and speak with Dr.'s nurse who assures me she had the Dr re-write the order and she re-faxed it over last Friday. Agrees she will re-fax it again to just to be ceratain. So ya' see the cause of my frustration? With my "determined mother and nobody is gonna mess with me or my baby tone", I tell her to call the Dr. because I am not 99% certain I am 100% certain it is for Gastrograffin. Nevertheless we get situated back in the room and the technician was a really nice and warm woman. Nethan had pretty much charmed the entire waiting room while we waited and this woman was also taken in by his smile and giggles. It was nice to have a few moments to sit him there and play peek-a-boo. Sure it sounds silly to most people who are reading this but I have been telling Nethan about the test over the past few days. I have been telling him what they would do to him and how I would be there and how this in the long run would help us to help him. Since Nethan appeared quite relaxed we went ahead and prepped him and did the test without strapping him down. With lead apron in place I was able to not only be present but also to help roll him over and see the screen with the Dr. The Dr. pretty quickly said he did not see a "transition" zone that would indicate Hirschprung's. Nethan crying and whimpering pretty much deadened any relief I should have felt or might have felt at hearing that good news. Both Nethan and I actually made it through this test quite well. I told the tech I would like to take the films with me so while I waited I let Nethan have some Mommy Milk. As usual Mommy Milk makes everything better, and he quickly gave up crying for swallowing.
If you have been following this story at all, you know I had hoped having this test would provide us with an answer of some sort. Unfortunately and fortunately that is not quite true. So now we know there is no actual obstruction and no Hirschprung's but Nethan is still an infant who needs daily adult dosages of Mineral Oil and the pretty regular liquid baby suppository to produce poop. Furthermore, the mineral oil is becoming increasingly difficult to get down him and the amount I need to get in him is also increasing. I left a message for Dr. S requesting we change to something else but he won't be in until Monday. The test was nicely therapeutic in the sense that it really is cleaning him out. The shit hasn't hit the fan here but it is explodin' and hitting just about everything else...He has already had 2 baths in the last 4 hours Don't fret too much though cause he is still smilin' away. He doesn't really seem to be hurting all the time, just when he is exploding...Really hard to fathom how all that poop can come from one little baby. Then you realize the last significant production was wayyyyy over a week ago.... There you have it....Just now waiting for the UCLA specialist Dr. M on the 30th....
posted by Crystal at
4:48 PM
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